STORY: Read about how European reference networks work in practice
Operational basis of European reference networks
The European Commission has established European reference networks as instruments for doctors to facilitate diagnosing and treating patients with rare diseases. The networks include doctors who treat rare diseases as well as other professionals in the field from different parts of Europe.
With the patient’s consent, their attending doctor may, if necessary, contact European reference networks and take advantage of the expertise of doctors from other countries. The EU Commission has developed a secure consultation platform for contact purposes, enabling online appointments. In addition to consultation opportunities for doctors, patients may, in some cases, also be treated in other EU countries. In that case, you can apply for a prior authorisation for the patient at Kela, or hospitals may arrange the treatment by outsourcing services to other hospitals.